Would you want to be tested to learn whether they had a genetic disease or predisposition if no cure was available? Why or why not?
1. I don’t like the idea of being tested because I would then live my life in fear of getting the disease or of my family numbers getting the disease. It would feel like a lot of freedom was removed from my life and that I couldn’t live every without worry. On the other hand, I understand why people would want to get tested. If you were predisposed to a disease that would kill you and finding out would save or prolong your life, then the testing is good. Despite all of this, I wouldn’t want to be tested and then spend each day thinking about how quickly and painfully I might die and worrying when I was going to get the disease
Would you agree to have your DNA be part of the study? Why or why not? Would you want royalties for your part in finding the gene? What if during the testing, the company discovered you had a gene that might result in a health problem later in life? Would you want to be informed? Why or why not?
2. I would agree to have my DNA be part of the study because morally, it is the right thing to do to help society and I believe in contributing to other people’s lives and the world around us. I wouldn’t expect to get any money for medicines because it not’s right to be paid for something when it is just who and you didn’t work for or do anything earn the money. If they discovered a problem gene, like I said in answer number one I would not want to know because I don’t want to spend my life worrying about something I might or might not get.
Identify the meaning of the terms genetic discrimination and genetic privacy. What are some ways to protect against this type of genetic discrimination?
3. Genetic discrimination is when people are treated differently by insurance companies or their employers because they have a genetic risk of getting a certain disease or disorder. People who have their genes tested increase their chances of genetic discriminaiton. Genetic privacy is protecting people’s personal genetic information from distribution. Some ways to protect against genetic discrimination are not keeping names with records, or keeping results in private places instead of big databanks and governments can pass laws to protect the identity or people who are tested.
Even though I disagree with you, and I would like to be tested and I would like to know if they found out that I had a disease, you defended your argument well. But what about if you had children? Wouldn't you want to know if they have a chance in getting the disease?
ReplyDeleteThis is really good dialogue Caroline. Cassie does have a lot of points and like she said above, if someone is predisposed to the disease then they should get tested. I agree, if there were a disease that had existed in my family, I probably would have my DNA checked before I had children. Cassie, you are only missing your reflection of the video and what you learned from it.
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